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One Step at a Time

Based in Surrey, United Kingdom
On GPBox since November 2019
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About One Step at a Time

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Our son Alfie, now ten was diagnosed with a rare genetic disorder called Gillespie Syndrome at the age of two. Alfie missed many of the important milestones and his physical delay meant that he was unable to sit up, walk and speak. He also had stomach problems needing operations to help him digest food. It has been a long, hard, lonely journey for us as a family. The uncertainty of what the future would hold for Alfie and regular visits to hospital gave us sleepless nights. The feeling of isolation was at times very bleak and we felt that there was nowhere to turn.

We are delighted that after years of hard work and Alfie’s fierce determination he is now able speak and walk with a frame. Obviously he still faces daily challenges but we count our blessing that he is making such fantastic progress. We feel very lucky that Alfie’s hard work has been rewarded by meeting some of his heros. We believe that this has given him the drive to excel in many areas.

We found Alfie’s passion and would love to help other families with special needs children fulfil their dreams and areas of interest. Many of the children with special needs that we know are not truly understood by others. The every day activities that most parents take for granted can be a tiring, anxious and an unpleasant experience for many of our families. This along with our own personal journey led us to create One Step at a Time in the hope of reaching other families in a similar situation to us.

Over the past year we have organised many fundraising events to enable us to treat families to outings, regular play days and coffee mornings. We are always seeking new equipment that will benefit the children who are part of our network.

Families who have children with special needs often deal with similar challenges and experience similar emotions. Parents can feel isolated and alone. One Step at a Time’s aim is to bring families together for friendship, support and provide a relaxed environment for children to socialise and play.

The charity was created in February 2014 by the Mumford family whose son, Alfie was born with a rare genetic disorder. They understand the importance of contact with other families in similar situations and hope that the group will enable families to feel less alone and be part of a small community.

Shop Policies

Shipping policy

To be arranged following sale.  Each item is individual.

Refund/Exchange policy

To be discussed at time of purchase.  Obviously our aim is for a happy customer who is pleased with any product and that is happy to be supporting our charity

Cancellation policy

Individual on each item.  

Accepted payments methods